Caregivers Are More Than A Medical Proxy

How To Cope With Chronic Illness

Getting a diagnosis of a chronic, incurable illness is a pivotal point in the timeline. A diagnosis seems like the end of the road, the question is finally answered. However, it is really just the beginning of the road. A road filled with scary symptoms, […]

Making It Through One Year Of FSGS

Why Pictures Are Worth More Than Likes

My Chronic Illness Does Not Define Me

It Consumes My Time, But It’s Not Who I Am When living with a chronic illness that is often all people see in you. However, we know that it is not a lifestyle that we choose or wish to participate in. All too often the […]

What is FSGS?

FSGS is rather new to me, and tbh is overshadowed by um I don’t know, the heart failure and pulmonary hypertension. However, without this rare kidney disease, I would have never known I was in heart failure and had pulmonary hypertension in the first place.  […]

The Woman on the Moon: Living With Moon Face

Let’s FACE it. If you have any type of chronic illness or autoimmune disease, you have been met face to face with the devil’s drug itself – PREDNISONE. Y’all this thing needs to come with a huge warning written all over it. Had I known […]