Caregivers come in all forms, and are more than just a medical proxy. No one should fight chronic illness alone. Caregivers need praise too.
Getting a diagnosis of a chronic, incurable illness is a pivotal point in the timeline. A diagnosis seems like the end of the road, the question is finally answered. However, it is really just the beginning of the road. A road filled with scary symptoms, […]
FSGS is a rare and serious disease affecting the kidneys. Here is where I stand one year post diagnosis, and treatments that have helped me.
Smile for the camera. You never know what life will bring, and those photos may be the closest and only thing you have to hold on to.
It Consumes My Time, But It’s Not Who I Am When living with a chronic illness that is often all people see in you. However, we know that it is not a lifestyle that we choose or wish to participate in. All too often the […]
FSGS is rather new to me, and tbh is overshadowed by um I don’t know, the heart failure and pulmonary hypertension. However, without this rare kidney disease, I would have never known I was in heart failure and had pulmonary hypertension in the first place. […]
Let’s FACE it. If you have any type of chronic illness or autoimmune disease, you have been met face to face with the devil’s drug itself – PREDNISONE. Y’all this thing needs to come with a huge warning written all over it. Had I known […]