No Rest For The Wicked

Rest is still very difficult for me. I am stubborn, I push myself a little too hard. I’m in denial and I don’t like to be told I can’t do something. Chronic disease is not new to me, but heart and lung disease is.  The […]

What is FSGS?

FSGS is rather new to me, and tbh is overshadowed by um I don’t know, the heart failure and pulmonary hypertension. However, without this rare kidney disease, I would have never known I was in heart failure and had pulmonary hypertension in the first place.  […]

The Woman on the Moon: Living With Moon Face

Let’s FACE it. If you have any type of chronic illness or autoimmune disease, you have been met face to face with the devil’s drug itself – PREDNISONE. Y’all this thing needs to come with a huge warning written all over it. Had I known […]

What is Pulmonary Hypertension (PAH)?

This is a loaded question, and takes a lot of explanation. Bear with me here. Pulmonary hypertension affects both the heart and the lungs. The primary issue is that the arteries in the lungs become narrowed and stiff. This can be caused by several different […]

What is Sjogren’s Syndrome?

That is an excellent question. When I was first diagnosed with Sjogren’s Syndrome 15 years ago, I was just worried about dry mouth and dry eyes. I figured I was just one of those people that will have perpetually dry skin. Little did I know […]


Welcome, and thanks for joining! My name is Emily. I’m a 30 something year old wife and mother of an angel baby. I’ve lived with multiple chronic illnesses since I was 4, yes FOUR, years old. It wasn’t until a recent series of unfortunate, life […]