Hi, My Name Is Emily… And I don’t know how to finish that sentence. It used to be very easy for me. I was really proud of what I had accomplished in life, and had no problem spitting out my resume for an introduction. Even […]
I’ll never forget the fist time someone told me my symptoms were in my head. It shaped the way I perceived my own body for fear of rejection.
Getting a diagnosis of a chronic, incurable illness is a pivotal point in the timeline. A diagnosis seems like the end of the road, the question is finally answered. However, it is really just the beginning of the road. A road filled with scary symptoms, […]
One year after diagnosis, here’s how I am managing my pulmonary hypertension. I’m not where I want to be, but I’m better than I expected.
CTEPH is a rare form of pulmonary hypertension that results from blood clots in the lungs. Read along as I share my shocking diagnosis story.
Having a medication pump attached with you at all times makes life a little less spontaneous. Here is how I am navigating life on remodulin.
After a lot of trial and error, I have come across a few things that make my life a little easier. It could be something to reduce my stress and anxiety, make my house not feel like a hospital, or just a simple treat to myself.
It Consumes My Time, But It’s Not Who I Am When living with a chronic illness that is often all people see in you. However, we know that it is not a lifestyle that we choose or wish to participate in. All too often the […]
Rest is still very difficult for me. I am stubborn, I push myself a little too hard. I’m in denial and I don’t like to be told I can’t do something. Chronic disease is not new to me, but heart and lung disease is. The […]
This is a loaded question, and takes a lot of explanation. Bear with me here. Pulmonary hypertension affects both the heart and the lungs. The primary issue is that the arteries in the lungs become narrowed and stiff. This can be caused by several different […]